One woman's journey from bed wetting as a child, to Interstitial Cystitis and to the InterStim. You will find a frank and honest discussion here about the bladder from a patient's view. This blog is not intended to be used for medical advice. You need to get that from your Doctor. This is only my story.
Friday, May 21, 2010
Little things
Time has a way of slipping into the future....and sometimes we might take for granted the special 'little' things that mean so much to our lives.
Today when I got off work, I reached for my doggie's leash and took him for a walk. Before the InterStim I would have to pee before I left work and be in a panic mode to get straight home to pee again. Now I don't have to worry about that. I am no longer married to the bathroom.
As I watched my little "Rascal" playing in the grass and doing 'his' business, I was looking at the beautiful Las Vegas Strip....the trees blowing in the wind....airplanes filled with happy tourists coming over the mountain to land at our airport......and just thinking about how much I am enjoying the simple things in life. I hope that I never take such things for granted. Thanks to Medtronics, the skill of my Dr. and a God that has blessed me richly......I gather joy in the 'little things!'
Monday, May 17, 2010
Contemplation
It's not uncommon for me to receive an email from someone who is contemplating getting the InterStim. They want to know how it feels, what the procedures are like, and if it helped me. What I tell them is this. I was going to the bathroom about 50 times a day. I now go 8-12 times a day. I sleep a whole lot longer, an average of 5-7 hours at night before having to get up, instead of getting up every 45 minutes. The procedures were NOT painful. I was awake for both. Just a couple of very quick moments of brief pain, but nothing bad or intollerable. The aftermath of my InterStim has been wonderful. I can drive across town without having to stop and pee before I get to my destination, and then have to pee again when I get there. I am not napping anywhere near as much as I was before and I feel alot better. I know that everyone will or may have a different experience, but what I can tell you is this. If you are contemplating having this procedure done, mine has been a complete success and yours can be too!
Tuesday, May 4, 2010
On me at all times
A big issue for those of us with the InterStim is what to do with the device we use to control it. I thought I would show everyone what I do with mine. I have a small black purse that has pockets on the front and back. It has a cord that is long enough so it can go around my neck. Wherever I leave the house, I have this purse around my neck at all times. That way I never lose it. This bag holds the device and the medical cards that I need to carry. I have other medical info in the bag as well, that I haven't shown for my other health problems. But as you can see, this little purse works great and it could one day save my life. I remind coworkers that incase of an emergency the paramedics need to shut this device off before they would give me any sort of electrical shock in case of a heart attack. This little purse is light weight and I often get asked, "Where did you get that?"
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