1.   I can't believe it's been so long since I have posted here. Life moves by so swiftly. Things have changed alot in my life. My health has declined alot and I am no longer able to work. I am on Disability now. While it is a blessing to have the Disability it is bittersweet to have had to leave a job that I enjoyed and people who were like family to me....sometimes a disfunctional family, but family none the less! My Interstim is working well. I recently had it tweeked by Medtronics and that helped alot with my losing control in the evenings when I would wake up and I am greatful for that.
2. I had a cystoscopy last week by a new Dr. at Nellis Air Force Base. My entire bladder is inflamed, as I was able to see the screen. The Dr. took his time during the examination  and explained alot of things, but after the procedure I asked when I should return, and he didn't really give me a date. Just said, if you are having problems, make an appointment. Normally you come back in six months for a cystoscopy, so I planned to do that, even though he didn't really give me any sort of answer. Well, the next morning his nurse called me and told me that he wanted me back in February for another cysto. I have never had them this close together. Makes me wonder if he saw something after he reviewed my images. The nurse couldn't answer that for me. I'm alittle worried but what can be done? Life is in God's Hands........ to be continued......
 
 

 

 

It's been awhile since I've been here. I'm truly sorry about that. My health is in decline and I am on oxygen 24/7 now. I am trying to eat healthier and trying to improve myself, but it's not easy. I have also been really upset that my Urologist moved out of state for a better opportunity and I am currently stuck with the WORST Urologist in Las Vegas. I am going to find a new Dr. One that actually treats a patient with dignity and respect. I told this current Dr. that I was having trouble holding my bladder and have accidents. What did he do? He thumps his finger against his head as if to say, "It's all in your head, lady." How disrespectful and rude, and I hate that guy. He has tons and tons of medical diplomas that he used to have hanging all over the waiting room, more than I could count, yet he doesn't know the first thing about helping a patient. Plus I know a patient who sees him and he doesn't even know the Interstim. My wires have migrated and that could very well be causing my problem. In any event.....he's not my Dr. anymore. I need one that cares.

Hard to believe it's been so long since I've been here.

So hard to believe that I've been so caught up with facebook, that I haven't been on here in so long. Alot has changed for me since my last posting. My health it declining and I am getting ready to retire from work. I can't stand for eight hours and physically I am feeling horrible.

Since my Dr. moved to Utah I have not been happy with the Urologist that I have been seeing. Two of the wires in my Interstim have moved outward slightly, but just enough that I am having problems. When I told the Urologist that I was not able to hold my bladder at night, he looks at me and thumps his finger against his head as if to tell me, "Lady it's all in your head." Well I left that visit with him humilated and insulted and still with my problem. I am getting ready to find a new urologist because as far as I am concerned this guy is an uncompassionate QUACK! Yes, I said it and I meant it!

Before the InterStim I had TERRIBLE irriatable bowel on top of horrid bladder urgency. Now the irritable bowel has been back with a vengence, and I am NOT able to make it to the bathroom on time at night with my bladder and even at times (far too many) during the day. I don't know if it's because of the wires moving or if it's another issue going on. All I know is that tomorrow I'm calling that bonehead and requesting an appointment with him and the medtronic rep. And there will be no thumping on his head this time, because I won't tolerate being insulted like that again. I will keep you posted.

About having a muga scan

Just came home from the hospital and having a Muga Scan to my heart. The testing actually from start to finish was about an hour. I went in and they did a small i.v. and extracted about an inch of blood in a small tube. The radioactive material would be put in that tube of blood and it takes about 20 minutes for the process. They ony use a few drops of that material. I sat in a waiting area watching a movie while waiting for the procedure itself.

I lay down on a very tiny table that was scooped in like an eaves trough that catches the rain. Unlike the photo I am sharing, my machine had TWO of those scanners. They put them on me just like this image in the shape of a V shaped roof, very close to my chest with only 2" separating the machines at the top. A camera was above me, I presume to monitor the patient and a small room to the side where people are talking and watching the scanning process. They inject the small amount of blood back into you and begin the test. All you do is lay there for about ten minutes, and then they move the large machines, one to my side and the other flat over the top of me for a few more minutes. I happened to mention to the attendant that I was seeing a hematologist for an internal bleed and when the muga scan was done, he moved the machine down over my abdomin and scanned it as well for a bleed. When the scan was done he was telling me that like me, his wife was having terrible problems with anemia. They 'thought' she was bleeding internally but discovered that she was drinking alot of tea and tea will interfear with the body's ablity to keep iron, and then make the person anemic. I am always drinking tea but that just came to a screeching STOP!

Anyway, the muga scan was painless and no big deal. I just pray my results will be good....that's where the worry is.

I turned my InterStim off during the process, even though there was nothing that would damage it during the testing.

Muga Scan

In a couple of hours I have to go to the hospital for a Muga Scan of my heart. I don't know why the cardiologist ordered this test....but I will have it done, and find out the results in a week. I'm not too worried about the test itself, so much as the anxiety over the results. I have inflamation throughout my body.....I don't know if it's effecting my heart....I can't let myself worry too much because life is in God's Hands.....and every breath we take is His.

How will you spend your Spring?

How will you spend your Spring? Will you spend it lying in bed feeling sorry for yourself....or will you find a grassy meadow....or a....beautiful desert hideaway to soak up some sun? No one likes to be in pain. No one likes to suffer with bladder issues. NO ONE LIKES Interstitial Cystitis!!!! But don't let it control your life! Get out there and move alittle....or....at the very least.....lay down in the sunshine and soak as much in as you can! Somehow, looking up at the universe always seems to make things right!

When the going gets tough....

When the going gets tough as it sometimes can.....just remember that under the fire of pain in our lives.....there still lies a rose. No matter what your adversity, your pain, your sorrow, your misery.....you are still a BEAUTIFUL, God-created creature and there is no one like you in this universe!